|Hanging out with Simon at Myrtle Beach|
|Simon and my brother Nathan playing mini-golf|
|My mom (grandma!) reads The Nose Book to Simon while he holds his purple elephant|
|Simon and his mom JoEllen bundled up after a swim at the pool|
And then, I wait. For a week. Until the following Tuesday (June 3rd) to find out their recommendation(s). Possible recommendations include:
- I am ready to be listed (not likely)
- I am looking good as a candidate but need to do X, Y or Z before they can make a final decision
- I am looking good as a candidate but am not yet ready to be listed - come back in three months
- Something cropped up during the evaluation that makes me not a good candidate and they will not be listing me (very unlikely)
My Best Friend's WeddingFortunately there will be a lot going on to distract me. My oldest best friend from Michigan, Erica, is getting married on June 7 in Greensboro. I am the one and only bridesmaid. I think it's going to be fantastic.
However, being in end-stage lung disease is far from the ideal time to have this honor bestowed upon me. So far, I managed to throw an excellent bachelorette party in the mountains in February...barely! I went wedding dress shopping and bridesmaid dress shopping with her. I went to the engagement party and there is a wedding brunch I hope to make it to next weekend.
But a lot of that has been just me showing up. Aside from making the wedding favors (60 small bars of 808 soap!) I haven't been able to do nearly as much as I would have wanted for this wedding. When Todd and I had our commitment ceremony five years ago, Erica was my right hand lady and she did so much to ensure the big day ran smoothly and that I was happy and able to enjoy things. I had total confidence in her. And now I wish that I could return the favor. Aside from showing up with my bars of soap and making a toast, I'm not really going to be able to do much of anything. Honestly, just showing up and making it through both the rehearsal dinner and wedding day is going to be a major accomplishment.
|Me, enjoying newly discovered Coors non-alcoholic beer, while my friend Erica sips on a margarita|
So while it's a once-in-a-lifetime event for my friend, to me it will also be another weekend of making sure I plan for enough portable oxygen, trying to keep up with my insulin pump and an irregular eating schedule, doing enough chest PT, getting extra sleep, taking the pills that make me cough less/keep my back from hurting/give me extra salt in the heat and trying to not cough so hard that I pee myself in front of a bunch of people in an expensive dress. In other words, it's hard to give someone else the attention they deserve then you are so busy trying to take care of yourself. What did I tell you? My health is a full time job! With no weekends off.